Treatment:

Treatments include:

• Surgery to treat bleeding in some areas
• Electrocautery or laser surgery to treat frequent or heavy nosebleeds
• Endovascular embolization to treat abnormal blood vessels in the brain and other parts of the body

Some patients respond to estrogen therapy, which can reduce bleeding episodes. Avoid taking blood-thinning medications.

Some patients may need to take antibiotics before having dental work or surgery. Ask your doctor what precautions you should take.

Support Groups:

HHT Foundation International -- www.hht.org

Expectations (prognosis):

People with this syndrome can live a completely normal lifespan, depending on the parts of the body where the AVMs are located.

Complications:

• Heart failure
• High blood pressure in the lungs (pulmonary hypertension)
• Internal bleeding
• Shortness of breath

Calling your health care provider:

Call your health care provider if your child has frequent nose bleeds or other signs of this disease.