Treatment:

A small number of patients who have no symptoms may not need specific treatment. For most patients with fistulas, the treatment of choice is to block the fistula during an arteriogram (embolization).

Some patients may need surgery to remove the abnormal vessels and nearby lung tissue.

Expectations (prognosis):

The outlook for patients with HHT is not as good as for those without HHT. It is possible for the condition to come back after blocking the fistula (embolization).

Surgery to remove the abnormal vessels usually has a good outcome, and the condition is not likely to return.

Complications:

Major complications after treatment for this condition are unusual. Complications may include:

• Bleeding in the lung
• Blood clot that travels from the lungs to the arms, legs, or brain (paradoxical embolism)
• Infection in the brain or heart valve

Calling your health care provider:

Call your health care provider if you often have nosebleeds or difficulty breathing, especially if you also have a history of HHT.