Treatment:

There is no specific treatment for Krabbe disease.

Some people have had a bone marrow transplant in the early stages of the disease, but this treatment has risks.

Support Groups:

United Leukodystrophy Foundation -- www.ulf.org

Expectations (prognosis):

The outcome is likely to be poor. On average, infants with early-onset cases die before age 2. People who develop the disease at a later age have survived into adulthood with nervous system disease.

Complications:

This disease damages the central nervous system. It can cause:

• Blindness
• Deafness
• Severe problems with muscle tone

The disease is usually life threatening.

Calling your health care provider:

Call your health care provider if your child develops symptoms of this disorder. Seizures, loss of consciousness, or abnormal posturing may be emergency symptoms.