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Apert syndrome

• Overview
• Symptoms
• Treatment
• Prevention

Alternative Names:

Acrocephalosyndactyly

Treatment:

The patient should be evaluated by a multispecialty cranio-facial surgery team at a children's medical center. Treatment consists of surgery to correct abnormal bone growth of the skull, mid-face, and jaw area.

A hearing specialist should be consulted if there are hearing problems.

Support Groups:

Children's Craniofacial Association -- www.ccakids.com

Expectations (prognosis):

The prognosis varies from child to child.

Complications:

Other birth defects may exist. Each child should be evaluated on an individual basis.

Calling your health care provider:

Call your health care provider if you have a family history of Apert syndrome or you notice asymmetric growth of the skull in your baby.

• Review Date: 7/1/2007
• Reviewed By: Brian Kirmse, MD, Mount Sinai School of Medicine, Department of HumanGenetics, New York, NY. Review provided by VeriMed Healthcare Network.

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