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Apert syndrome - Treatment

Alternative Names

Acrocephalosyndactyly

Treatment:

Treatment consists of surgery to correct abnormal bone growth. Children with this disorder should be examined by a specialized cranio-facial surgery team at a children's medical center.

A hearing specialist should be consulted if there are hearing problems.

Support Groups:

Children's Craniofacial Association -- www.ccakids.com

Calling your health care provider:

Call your health care provider if you have a family history of Apert syndrome or you notice your baby's skull is not developing normally.

Syndactyly

Reviewed last on: 8/4/2011
Chad Haldeman-Englert, MD, Wake Forest University School of Medicine, Department of Pediatrics, Section on Medical Genetics, Winston-Salem, NC. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.

References

Kinsman SL, Johnston MV. Congenital Anomalies of the Central Nervous System. In: Kliegman RM, Behrman RE, Jenson HB, Stanton BF, eds. Nelson Textbook of Pediatrics. 18th Ed. Philadelphia, Pa: Saunders Elsevier; 2007: chap 592.

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