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Albinismo - Treatment

Nombres alternativos

Albinismo oculocutáneo; Albinismo ocular; Síndrome de Hermansky-Pudlak

Tratamiento:

El objetivo del tratamiento es aliviar los síntomas y depende de la gravedad del trastorno.

El tratamiento implica proteger la piel y los ojos del sol:

  • Reducir el riesgo de sufrir quemaduras solares, evitando el sol, usando protectores solares y cubriéndose completamente con ropa al exponerse al sol.
  • Los protectores solares deben tener un alto factor de protección solar (FPS).
  • Las gafas de sol (protegidas contra radiación UV) pueden aliviar la sensibilidad a la luz.

Las gafas a menudo se recetan para corregir los problemas de visión y de posición de los ojos. Algunas veces, se recomienda la cirugía de los músculos oculares para corregir movimientos oculares anormales (nistagmo).

Grupos de apoyo:

National Organization for Albinism and Hypopigmentation:www.albinism.org

International Albinism Center: www.med.umn.edu/ophthalmology/centers/albinism/home.html

Hermansky-Pudlak Syndrome Network: www.hpsnetwork.org

Pronóstico:

El albinismo generalmente no afecta la expectativa de vida de una persona; sin embargo, el síndrome de Hermansky-Pudlak la puede acortar debido a enfermedad pulmonar o problemas de sangrado.

Las personas con albinismo pueden estar limitadas en sus actividades debido a que no pueden tolerar el sol.

Posibles complicaciones:

  • Disminución de la visión, ceguera
  • Cáncer de piel

Cuándo contactar a un profesional médico:

Consulte con el médico si tiene albinismo o síntomas como sensibilidad a la luz que causan molestia o también si observa cualquier cambio cutáneo que pudiera ser un signo temprano de cáncer de la piel.

  • Reviewed last on: 10/14/2009
  • Luc Jasmin, MD, PhD, Departments of Anatomy and Neurological Surgery, University of California, San Francisco, CA. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.

Referencias

Summer GS. Albinism: classification, clinical characteristics, and recent findings. Optom Vis Sci. 2009;86:659-662.

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