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Síndrome de Apert

Nombres alternativos:

Acrocefalosindactilia

Tratamiento:

El paciente debe ser evaluado por un equipo interdisciplinario de cirujanos craneofaciales en un centro médico infantil. El tratamiento consiste en una cirugía para corregir el crecimiento óseo anormal del cráneo, la parte media de la cara y el área mandibular.

Si hay problemas de audición, se debe consultar con un especialista en este campo.

Grupos de apoyo:

Children's Craniofacial Association: www.ccakids.com

Expectativas (pronóstico):

El pronóstico varía en cada niño.

Complicaciones:

Es posible que existan otras anomalías congénitas. Cada niño debe ser evaluado en forma individual.

Situaciones que requieren asistencia médica:

Se debe consultar con el médico si hay antecedentes familiares del síndrome de Apert o si se nota un crecimiento asimétrico del cráneo en un bebé.

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