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Trisomía 18 - Treatment

Nombres alternativos

Síndrome de Edwards

Tratamiento:

El manejo médico de los niños con trisomía 18 se planea caso por caso. Los tratamientos que se utilicen dependen del estado de cada paciente.

Grupos de apoyo:

  • Support Organization for Trisomy 18, 13 and Related Disorders (SOFT). www.trisomy.org
  • Trisomy 18 Fundación: www.trisomy18.org

Pronóstico:

La mitad de los bebés con esta afección no sobrevive más allá de la primera semana de vida. Algunos niños han sobrevivido hasta los años de la adolescencia, pero con problemas de salud y del desarrollo graves.

Posibles complicaciones:

Las complicaciones dependen de los defectos y síntomas específicos.

Cuándo contactar a un profesional médico:

La asesoría genética puede ayudarles a las familias a entender la enfermedad, los riesgos de heredarla y cómo cuidar al paciente.

  • Reviewed last on: 8/4/2011
  • Chad Haldeman-Englert, MD, Wake Forest School of Medicine, Department of Pediatrics, Section on Medical Genetics, Winston-Salem, NC. Review provided by VeriMed Healthcare Network. Also reviewed by David Zieve, MD, MHA, Medical Director, A.D.A.M., Inc.
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