Departments of Neurology and Neurosurgery

Center for Neuromuscular Disease

Neuromuscular Disease - Related Web Links

We are providing these links to related resources as a service to our users. We are not responsible for the information at the linked sites and do not endorse any products or services found there.

Amyotrophic Lateral Sclerosis & Spinal Muscular Atrophy

The ALS Association
21021 Ventura Blvd., Ste. 321
Woodland Hills, CA 91364-2206
Tel: 800-782-4747
Muscular Dystrophy Association
3300 East Sunrise Dr.
Tucson, AZ 85718
Tel: 800-572-1717
Families of Spinal Muscular Atrophy
National Headquarters
P.O. Box 196
Libertyville, Illinois 60048-0196
Tel: 800-886-1762

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Autonomic Disorders

Dysautonomia Foundation, Inc.
633 Third Avenue, 12th Floor
New York, NY 10017
Tel: 212-949-6644
Fax: 212-682-7625
National Dysautonomia Research Foundation
421 W. 4th St., Suite 9
Red Wing, MN 55066-2555
Tel: 651-267-0525
Fax: 651-267-0524
Shy-Drager/Multiple System Atrophy Support Group, Inc
P.O. Box 279
Coupland, TX 78615
Tel: 866-SDS-4999 & 866-SDS-5999

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Charcot-Marie-Tooth Disease

Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
Tel: 800-606-CMTA
Muscular Dystrophy Association
3300 East Sunrise Dr.
Tucson, AZ 85718
Tel: 800-572-1717

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Diabetic Neuropathy

Juvenile Diabetes Research Foundation International
120 Wall Street
New York, NY 10005-4001
Tel: 800-533-CURE (2873)
American Diabetes Association National Service Center
1660 Duke Street
Alexandria, VA 22314
Tel: 800-232-3472 or 703-549-1500
American Dietetic Association
216 W. Jackson Boulevard
Chicago, IL 60606-6995
Tel: 800-877-1600 or 312-899-0040
National Institutes of Health (NIDDK)

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Facioscapulohumeral Muscular Dystrophy

FSH Society
3 Westwood Road
Lexington, MA 02420
Tel: 781-860-0501

FSH Society
West Coast Office
1507 Traske Rd.
Encinitas, CA 92024
Tel: 760-632-5411

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Guillain-Barré Syndrome

Guillain-Barré Syndrome Foundation International
P.O. Box 262
Wynnewood, PA 19096
Tel: 610-667-0131

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Inflammatory Myopathies

Muscular Dystrophy Association
3300 East Sunrise Dr.
Tucson, AZ 85718
Tel: 800-572-1717
Myositis Association
755 Cantrell Avenue, Suite C
Harrisonburg, VA 22801
Tel: 540-433-7686
Fax: 540-432-0206
maa@myositis.org

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Kennedy's Disease

Kennedy's Disease Association, Inc
P.O. Box 2050, Simi Valley, CA 93062-2050 (U.S.A.)
Tel: 805-577-9591
info@kennedysdisease.org

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Mitochondrial Disorders

United Mitochondrial Disease Foundation
8085 Saltsburg Road, Suite 201
Pittsburgh, PA 15239
Tel: 412-793-8077

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Muscular Dystrophy

Muscular Dystrophy Association
3300 East Sunrise Dr.
Tucson, AZ 85718
Tel: 800-572-1717
Duchenne Parent Project
1012 North University Blvd
Middletown, OH 45042
Phone: (513) 424-0696
Tel: 800-714-KIDS
The Muscular Dystrophy Family Foundation
2330 North Meridian Street
Indianapolis, Indiana 46208-5730
Tel: 800-544-1213

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Myasthenia Gravis

Myasthenia Gravis Foundation of America, Inc.
1821 University Ave, Suite S256
St. Paul, MN 55104
Tel: 800-541-5454
mgfa@myasthenia.org

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Myotonic Dystrophy

International Myotonic Dystrophy Organization
PO Box 1121
Sunland, CA 91041-1121
United States of America
Tel: 866-679-7954
818-951-2311

Myotubular Myopathy

X-Linked Myotubular Myopathy Resource Group
2602 Quaker Drive
Texas City, Texas, USA 77590
Tel: 409-945-8569

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Peripheral Neuropathy

The Neuropathy Association
60 E. 42nd Street, Suite 942
New York City, N.Y. 10165
Tel: 800-247-6968; 212-692-0662
Charcot-Marie-Tooth Association
2700 Chestnut Street
Chester, PA 19013-4867
Tel: 800-606-CMTA
Muscular Dystrophy Association
3300 East Sunrise Dr.
Tucson, AZ 85718
Tel: 800-572-1717

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Pain (Chronic)

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
Tel: 916-632-0922
American Pain Society
4700 W. Lake Ave.
Glenview, IL 60025
Tel: 847-375-4715

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Periodic Paralysis

The Periodic Paralyses Association
1024 Royal Oaks Drive #620
Monrovia, California 91016
Tel: 626-303-3244
Fax: 626-337-1966

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Post-Polio Syndrome

International Polio Network
4207 Lindell Boulevard, #110
Saint Louis, Missouri 63108-2915 USA
Tel: 314-534-0475
Polio Survivors Association
12720 La Reina Ave.
Downey, CA 90242
Tel: 562-862-4508

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This page was last updated on: October 4, 2012.

For more information about the University of Maryland Departments of Neurology and Neurosurgery, or to make an appointment, call the University Physicians Consultation and Referral Service at 1-800-492-5538 (patients) or 1-800-373-4111 (physicians).